World Federation of Hemophilia

 

Distribution of Donated Factor

Hemophilia of Georgia supports the World Federation of Hemophilia by coordinating shipment of clotting factor donated by pharmaceutical companies to developing countries around the world. In 2013, 18 million units of factor were sorted, packaged and shipped to 43 countries. Here is an alphabetical list of countries that receive donated factor through this program. Click here for more detailed maps.

World Hemophilia Day

The World Federation of Hemophilia designated April 17 as World Hemophilia Day.  To learn more about World Hemophilia Day, please view the video and other materials on www.wfh.org.  Hemophilia of Georgia also encourages everyone to consider making a donation to the World Federation of Hemophilia.

Twinning Program

Hemophilia of Georgia participates in the WFH's Hemophilia Organization Twinning Program which pairs hemophilia patient organizations in developing countries with corresponding organizations in developed countries to share knowledge, experience and best practices. From 1999 to 2004, Hemophilia of Georgia worked with the Sociedad Chilena de la Hemofilia in Chile and from 2005 to 2009 with the Sociedad Hondureña de Hemofilia in Honduras. In 2007, the WFH named Hemophilia of Georgia and the Sociedad Hondureña de Hemofilia as their Twins of the Year based on the accomplishments of the two organizations.

Since 2012, Hemophilia of Georgia has been a twin with the Fundación Nacional de Hemofilia Bolivia. The goals of this twinning include advocating for access to diagnostic services, creating a registry of people with bleeding disorders, developing educational materials and workshops, and building the capacity of the organization to better serve the needs of those affected by bleeding disorders in Bolivia.