The Hemophilia Handbook

The Hemophilia Handbook, published by Hemophilia of Georgia and distributed to all clients in the state, is a guide to living with a bleeding disorder.  This comprehensive, easy-to-read resource for people with hemophilia and their families was originally published in 1988. 

The current, fourth edition was published in 2002 and  contains 348 pages of up-to-date information on these important topics:  Understanding Hemophilia, Genetics, Comprehensive Care, Infusing Factor, Types of Bleeds, Staying Healthy, Complications, Resources, Feelings and Reactions, and Money Matters

The handbook also contains information on these topics: Recombinant Factor, Hepatitis, Factor Recalls, Creutzfeldt-Jakob Disease, Factor Purification Methods, Ports and Lines, EMLA Cream and Ela-Max Cream, Changes in Medicare,  Immunization Schedules. Immune Tolerance, and Parvovirus.  

Since 2002, Hemophilia of Georgia has also offered a Spanish-language version of The Hemophilia Handbook. La Guía de Hemofilia is the most comprehensive Spanish-language resource available for people with hemophilia.

Both The Hemophilia Handbook and La Guía de Hemofilia are provided at no charge as a benefit to people in Georgia who have these bleeding disorders. Copies of the handbooks are also available to donors who make a contribution to Hemophilia of Georgia. Learn more about handbook donations.