HoG Handbook

What I Need to Know About My Bleeding Disorder


This is a list of things you need to know so you can "take charge of your health."

  • My type of bleeding disorder
    • If you have hemophilia is it A (factor VIII) or B (factor IX)?
    • If you have von Willebrand Disease, what type is it?
  • My level of severity
    • Is your bleeding disorder considered mild, moderate, or severe?
    • If you have hemophilia, what % of factor do you have in your blood?
  • If I have an inhibitor from taking factor concentrate

  • My weight

  • What medication I use to treat my bleeding disorder
    • If you use factor concentrate, what brand is it and what is the dosage?

  • If I’ve had the shot (vaccine) for Hepatitis A, or if I'm immune

  • If I have Hepatitis B, or if I've had the vaccine, or if I'm immune

  • If I have Hepatitis C

  • If I have HIV

  • The condition of my joints

  • My family's bleeding disorder history and who is a carrier

  • The right way to use my medicine

  • What to do if I have an allergic reaction  

  • The health insurance I have

  • The shots (vaccines) I have had

  • The exercises I do to strengthen my body

  • Any special diet I eat