What I Need to Know About My Bleeding Disorder

This is a list of things you need to know so you can "take charge of your health."

• My type of bleeding disorder
• If you have hemophilia is it A (factor VIII) or B (factor IX)?
• If you have von Willebrand Disease, what type is it?
  
• My level of severity
• Is your bleeding disorder considered mild, moderate, or severe?
• If you have hemophilia, what % of factor do you have in your blood?
  
• If I have an inhibitor from taking factor concentrate
  
  
• My weight
  
  
• What medication I use to treat my bleeding disorder
• If you use factor concentrate, what brand is it and what is the dosage?
  
  
• If I’ve had the shot (vaccine) for Hepatitis A, or if I'm immune
  
  
• If I have Hepatitis B, or if I've had the vaccine, or if I'm immune
  
  
• If I have Hepatitis C
  
  
• If I have HIV
  
  
• The condition of my joints
  
  
• My family's bleeding disorder history and who is a carrier
  
  
• The right way to use my medicine
  
  
• What to do if I have an allergic reaction  
  
  
• The health insurance I have
  
  
• The shots (vaccines) I have had
  
  
• The exercises I do to strengthen my body
  
  
• Any special diet I eat