The Hemophilia, von Willebrand Disease & Platelet Disorders Handbook is a comprehensive guide to living with a bleeding disorder. We believe that by understanding all aspects of bleeding disorders, you can be active in your own care. The Handbook does not replace routine medical care at a hemophilia treatment center. It does add to it. You will often have questions when you are away from the doctor’s office. You will need an easy-to-understand reference that you can read at your own pace.
You may find that your doctor does not agree with all the guidelines given in The Handbook. This is as it should be. Our guidelines are based on research and experience and are general. Your own doctor can give you specific advice based on your health and needs.
Most parts of The Handbook speak directly to the person with a bleeding disorder. However, The Handbook was also written for family members. Their lives are also deeply affected. They need help in dealing with a long-lasting health problem. We believe that by knowing the facts you can put aside the scary myths and stories you may have heard about bleeding disorders.
The Hemophilia, von Willebrand Disease & Platelet Disorders Handbook is constantly growing. Each time you consult The Handbook, look to see what is new. Our goal is to keep pace with the expanding knowledge of bleeding disorders and present it in an easy-to-understand way. We have tried to get many different viewpoints in order to make The Handbook as complete as possible. If you have a question or a comment about what you read, please use the comments section at the bottom of each page and we will respond to you as quickly as possible. Directions for how to post a comment can be found here.
We hope that The Handbook will be a source of information you turn to again and again. We also hope that you will call your hemophilia treatment center to get more information.