Educational Resources
We are here to help. Hemophilia of Georgia (HoG) helps people who have bleeding disorders such as hemophilia and von Willebrand Disease. We provide HTC services, pharmacy services, and a variety of educational programs to help you and your family learn more about living with a bleeding disorder.
The Hemophilia, von Willebrand Disease & Platelet Disorders Handbook
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Our handbook is a comprehensive guide to living with a bleeding disorder. We believe that by understanding all aspects of bleeding disorders, you can be active in your own care. |
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Bleeding Disorders Fact Sheets
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Hemophilia von Willebrand Disease Bernard Soulier Syndrome Factor II Deficiency Factor V Deficiency Factor VII Deficiency Factor X Deficiency Factor XI Deficiency Factor XIII Deficiency Fibrinogen Disorder Glanzmann's Thrombasthenia Platelet Storage Pool Disorders |
| Hemlibra Treatment For Hemophilia Fact Sheet | Hemlibra Treatment for Hemophilia |
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Hemophilia of Georgia’s General Brochure -Provides a general overview of our services and programs. |
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Resources created in Collaboration with the Foundation for Women & Girls For Girls with Bleeding Disorders: What to Expect During Your First Gynecological Exam For Women and Girls with Heavy Menstrual Bleeding: About Your Period |
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The Child with a Bleeding Disorder: First Aid for School Personnel A publication aimed at school nurses and teachers who have a student with a bleeding disorder. Descriptions of typical injuries and other incidences when bleeding occurs are discussed with proper steps that need to be followed, as well as standard precautions and medications. |
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Playing it Safe: Bleeding Disorders, Sports and Exercises This comprehensive educational booklet describes the importance of physical activity for joint health and overall wellness in people living with bleeding disorders. It provides an overview of various sports and activities for all stages of life and addresses how to participate in physical activity safely. |
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Nosebleeds: Created in Collaboration with the National Bleeding Disorders Foundation's Nursing Working Group and nurses from Canada, this publication describes the unique issues a person with a bleeding disorder faces with a nosebleed. Causes of nosebleeds, basic treatment, when to consult the bleeding disorder treatment center, and prevention issues are discussed. |
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Mental Health: This list is for individuals and families affected by bleeding disorders who are in mental health crisis. Individuals experiencing a life-threatening situation or having thoughts of self-harm or harming others should seek immediate assistance.. |
In addition, we also offer the Hemophilia of Georgia Library, which includes books, pamphlets, coloring books, and activity books covering all aspects of hemophilia and bleeding disorders as well as topics like child development and coping with chronic illness.
Hemophilia of Georgia patients and clients can access these library materials by contacting HoG Director of Community Education or their Outreach Nurse at 770-518-8272. People outside Georgia can order educational publications through the Neil Frick Resource Center (NFRC), the information clearinghouse of the National Bleeding Disorders Foundation, by calling 1-800-424-2634, ext. 2.
Additional information and educational resources are available through these organizations:
National Bleeding Disorders Foundation
National Bleeding Disorders Foundation has an information distribution service, as well as newsletters and other educational materials.
Phone: 1-800-424-2634, ext. 2. (information service)
www.bleeding.org
World Federation of Hemophilia
International agency that promotes education and research.
Phone: 514-875-7944
www.wfh.org
Canadian Hemophilia Society
The society's web site has easy-to-read information about hemophilia and other bleeding disorders.
Phone: 1-800-668-2686
www.hemophilia.ca/en
U.S. Food and Drug Administration
Center for Biologics Evaluation and Research
USDA Recall/Withdrawal Page:
https://www.fda.gov/safety/recalls-market-withdrawals-safety-alerts
CDC - Hemophilia Treatment Centers
The Centers for Disease Control and Prevention (CDC) directory that lists hemophilia treatment centers (HTCs), and organizations. CDC list of Hemophilia Treatment Centers:
https://www.cdc.gov/hemophilia/treatment/treatment-centers.html?CDC_AAref_Val=https://www.cdc.gov/ncbddd/hemophilia/HTC.html