Pharmacy Closings (A pharmacist will be on call for emergencies.)
September 7 – Labor Day
October 12- Columbus Day

We had 167 people support us at Glover Park Brewery, where everyone enjoyed music, playing games, great food, and of course, beer!  More importantly, everyone came together, while raising money to help fund research for a cure for hemophilia and other bleeding disorders.

Thank you to our sponsors:

• Literacy courses
• English as a second language courses
• Career certifications (e.g., medical assistant, nursing assistant)
• Assistance with Continuing Education Units (CEU) to maintain professional certifications/licenses
• GED preparation and testing
• College application costs
• Standardized tests for admissions costs (e.g., ACT, SAT, GRE, LSAT)
• Professional exams (e.g., bar exam, teachers’ exam, registered nurse exam)

To qualify, you must: *

• Have hemophilia, von Willebrand Disease (VWD), or another bleeding disorder or be a custodial parent of a child under the age of 18 with a bleeding disorder
• Reside in Georgia and have been a permanent resident of Georgia for one year
• Have income below 500 percent of federal poverty limit  
• Submit proof of financial need with your application and apply annually

If you satisfy these requirements and would like to apply, please contact your HoG Outreach Social Worker or contact Emily Brown, Director of Social Work, at 770-518-8272.
* You cannot be a current recipient of the John Youtsey Academic Scholarship.

Approximately 110 campers joined us at Camp Twin Lakes Will-A-Way to have a wonderful time, experience new adventures, make new friends, overcome fears, and learn about their bleeding disorder. Each morning kicked off with our legendary spirit time, where campers danced, sang, and cheered before participating in a variety of activities, including swimming, boating, archery, rock climbing, horseback riding, and farm visits.

Camp Wannaklot 2026 was an unforgettable and inspiring experience for our campers! A HUGE round of applause goes out to our amazing volunteers, the incredible medical team from Children’s Healthcare of Atlanta (CHOA), Emory, and Augusta HTCs, and the dedicated staff from Hemophilia of Georgia and Camp Twin Lakes. Your hard work, passion, and commitment make Camp Wannaklot the magical place it is.

We couldn’t do it without you. Thank you for helping make this summer one for the books! 

•    Alpharetta - Score Fore a Cure is set to take place on Wednesday, September 3 from 6:00 p.m. to 9:00 p.m. at Topgolf Alpharetta. Purchase your tickets and sponsorships today!
•    Augusta  - Score Fore a Cure will be on Monday, September 22 from 6:00 p.m. to 9:00 p.m. at Topgolf Augusta. Purchase your tickets and sponsorships today!

At both events, participants will enjoy:
•    2.5 hours of game play
•    Buffet dinner
•    All-you-can-drink nonalcoholic beverages

Net proceeds will help fund Hemophilia of Georgia's research efforts for a cure to bleeding disorders.

If you have questions, please contact Hemophilia of Georgia at sponsorship@hog.org or 470-621-0605.

HoG’s Outreach Nurses provide personalized care and training at home to help meet each patient’s needs. Through hands-on instruction and compassionate support, they help children and adults develop essential skills—building confidence, fostering independence, and making a meaningful difference in everyday life. 

“I am glad my nurse, Hollie, is teaching me how to infuse myself. I know how important it is for me to be able to do this by myself.” – Walter, young patient.

Hemophilia of Georgia is committed to supporting, strengthening, and empowering individuals with bleeding disorders and their families as they face daily challenges with courage, perseverance, and resilience. We believe that through education and awareness, we can better support individuals living with a bleeding disorder and improve their quality of life. In addition to our outreach nurses, HoG Social Workers provide in-home support and education for patients and families. HoG  also offers a wide range of educational resources, including community events, an informative website, a monthly e-newsletter, and a comprehensive online educational resource, The Hemophilia, von Willebrand Disease & Platelet Disorders Handbook.

Our hope is that one day, no one will have to live in a world affected by bleeding disorders. Until that day comes, we remain dedicated to creating a world where individuals with hemophilia and other bleeding disorders receive the education, care, support, and compassion they deserve. Because at Hemophilia of Georgia, we know it takes so much more than medicine.

• 35 procedures in 2023
• 55 procedures in 2024
• 53 procedures in 2025

The procedures ranged from routine dental cleanings to more complex interventions such as tooth extractions, root canals, wisdom teeth removal, fillings, and implants or crowns. Patients represented a range of diagnoses, including von Willebrand disease, hemophilia A, and hemophilia B.

In 2025, outcomes were confirmed and closely tracked for 20 patients, offering valuable insight into real-world safety. Of those patients:

•    19 experienced no complications
•    1 patient had a delayed hematoma, which was successfully managed with drainage and additional factor infusion

Why This Matters

These findings reinforce a critical message: multidisciplinary collaboration works. When dentists partner with hematology teams and follow structured, evidence-based treatment plans, the risk of bleeding complications drops dramatically. This model not only enhances patient safety but also expands access to routine dental care for a population that has historically faced barriers.

Dentists play a vital role in this success. By engaging early with hemophilia treatment centers and working as part of a coordinated care team, dental providers can ensure their patients receive timely, safe, and effective treatment—without unnecessary delays or cancellations.

Looking Ahead

As awareness of this coordinated model grows, there is significant opportunity to improve oral health outcomes for patients with bleeding disorders across Georgia and beyond. Continued collaboration, education, and data tracking will be essential to expanding access and maintaining high standards of care.

For more information about coordinated dental care for patients with bleeding disorders, providers and patients are encouraged to contact Hemophilia of Georgia’s clinical team at 770-518-8272.

You can also sign up for our reminder program, and we’ll send you a reminder to order. You can sign up for the program on our website. 

Pharmacy Closings (A pharmacist will be on call for emergencies.)
July 3 – Independence Day (Observed)
September 7 – Labor Day

• Hemophilia of Georgia Pharmacy
• Beacon Pharmacy

 

We had 150 people support us at Service Brewing Co., where everyone enjoyed music, playing games, great food, and of course, beer!  More importantly, everyone came together, while raising money to help fund research for a cure for hemophilia and other bleeding disorders.

Join Us at Hops for Hemophilia in Marietta

Grab your crew and “hop” on over to Glover Park Brewery to raise a glass, raise awareness, and raise funds for bleeding disorder research at Hops for Hemophilia on August 8th from 4:00 p.m. to 6:30 p.m. We are excited to once again bring you a wonderful afternoon with beer, non-alcoholic drinks, music, delicious food, games, door prizes, and community. We can’t wait to see YOU there!

Tickets and sponsorships are available on the event website. Purchase your tickets and sponsorships today!

If you have questions about sponsorship opportunities, please email sponsorship@hog.org or call 470-621-0605.

• Provide education on bleeding disorders and treatment basics
• Review signs and symptoms of a bleed and when to act 
• Help staff understand emergency response and care plans 
• Answer questions and build confidence in supporting your child 

Getting started is easy:

• Contact your outreach nurse
• Not sure who your nurse is? Contact Erica Hunter at 770-518-8272, and she’ll help connect you 
• You’ll be asked to complete a permission form so we can coordinate directly with the school or daycare 
• Prefer to share information yourself? We can provide an education packet for you to give to school staff 

We’re here to support you every step of the way and help ensure your child has a safe, happy, and successful school year.

• Carry your medication with you.
   
• Any traveler who has a health problem needs to carry a letter from their doctor. The letter should tell what the health problem is and how it is treated. Your HTC can give you this letter. It should tell what kind of bleeding disorder you have and its severity (mild, moderate, or severe). If you are carrying factor and an infusion kit (syringes, needles, etc.), the letter should explain why you are doing this. Lastly, it should tell what to do in an emergency.
   
• Always wear a MedicAlert® necklace or bracelet. This could save your life. Emergency workers are trained to look for MedicAlert® tags. Letters or cards in wallets can be lost.
   
• Hemophilia of Georgia provides free factor travel kits to our pharmacy patients. You can request a free kit when you place your order online.

Complete details, more tips, and a handy traveler’s checklist are available in the Hemophilia, von Willebrand Disease, & Platelet Disorders Handbook.

After the GNMOT concluded, all participants joined others in the community for the World Congress for four days of plenaries, workshops, poster sessions and networking. During the World Congress Deniece Chevannes chaired a session titled “Access to Care — Not Just Access to Treatment”, and all members of the HoG team facilitated a table in the exhibit hall to promote Hemophilia of Georgia and to share our knowledge with members of the bleeding disorder community from around the world. 

HoG’s Youth Fellows were incredibly grateful for the opportunity to attend the GNMOT and World Congress. Here’s what they had to say:  

• “Attending the Global NMO Training meant a lot to me. Growing up with a severe bleeding disorder isn’t easy, but I believe one day it will be. I always try my best to remind others how important it is to tell their story and advocate for themselves. Reconnecting with the global bleeding disorder community reminded me how fortunate I am regarding access to care. I couldn’t be more grateful to represent Hemophilia of Georgia.” 
•  “Attending the GNMOT and World Congress means building lifelong connections and gaining the skills needed to become a stronger advocate.” 
• “I will bring what I learned from other youth leaders back to Hemophilia of Georgia! I want to use these ideas to strengthen our programs, help more patients the way HoG has helped me, and provide the same support and sense of belonging I received growing up being a part of the HoG community!” 
• “With the knowledge and experience I’ve gained, I hope to apply these skills in my everyday workplace and within my NMO to advocate effectively and educate others.” 

 This experience reflects HoG’s ongoing commitment to building the next generation of leaders and strengthening the future of care and advocacy, both here in Georgia and around the globe.  

You can also sign up for our reminder program, and we’ll send you a reminder to order. You can sign up for the program on our website. 

Pharmacy Closings (A pharmacist will be on call for emergencies.)
May 25 – Memorial Day

The lovely spring weather added to the enjoyment of the weekend surrounded by the lake and the beautiful campgrounds! After families arrived, settled in, and enjoyed dinner together, they were able to spend some time familiarizing themselves with the campgrounds, making smores, and playing some fun trivia games while gathered around the campfire. After the sun went down and bedtime was nearing, families could head to their cabins or wind down with a movie under the amazing night sky!

Each morning, families were able to begin their day by fishing on the lake or taking a relaxing nature walk. After breakfast on Saturday, families participated in two hours of interactive education. Everyone gathered in the gym for a session with Dr. Cox who spoke about the importance of physical therapy and staying active for someone with a bleeding disorder. This conversation included time for questions and group exercises. Next, moms stayed in the gym for a conversation with Dr. Thaxton about the importance of caring for yourself so you can better care for others. Meanwhile, the rest of the camp engaged in fun activities with their HoG buddies around camp and discussed ways that activities can be modified to be safer for people with bleeding disorders.

After lunch, families had a great time participating in fun activities such as boating, rock climbing, ziplining, horseback riding, arts & crafts, archery, lawn games, or just chilling in the hammock village that HoG staff built! These are just a few of the many educational, empowering, and often life-changing offerings that are provided at Family Camp! Sunday morning, we wrapped up a fantastic weekend with breakfast and some more fun family activities around camp!

It was an exciting and successful weekend! A huge shout-out and thank you to all the volunteers and staff who came out to support family camp! Because of all of you, our families had a fabulous weekend learning, bonding, and engaging with the community. We could not do it without all your support!