Blogs

Mark Your Calendar for Our Holiday Closings

Tue, 23 Jun 2026 11:22:00 EST

To ensure you have enough medication and supplies on hand, please remember to place your orders ahead of the upcoming holidays, as our offices will be closed during that time. Place your pharmacy orders early by visiting us online or calling us at 770-518-8272. The HoG and Beacon pharmacies will be closed on the dates listed below.

You can also sign up for our reminder program, and we’ll send you a reminder to order. You can sign up for the program on our website.

Pharmacy Closings (A pharmacist will be on call for emergencies.)
July 3 – Independence Day (Observed)
September 7 – Labor Day

Your Feedback Helps Us Serve You Better

Tue, 23 Jun 2026 11:19:00 EST

HoG's Pharmacists are dedicated to your care and do their best to make you happy! With decades of experience dispensing bleeding disorder medications, they work closely with hemophilia treatment centers and HoG Outreach Nurses to ensure each patient’s treatment plan is fully coordinated.

The pharmacy team has decades of experience dispensing clotting factor medications and work closely with the hemophilia treatment centers and the HoG Outreach Nurses to coordinate patients' treatment plans.

YOU can help us continue to provide the best service possible! If you are a patient of Hemophilia of Georgia or the Beacon pharmacy, we invite you to share your experience by completing our short survey.

We’re not just looking for praise—we genuinely want to know how we can better serve you. Your honest feedback helps us improve and meet your needs more effectively. Simply click on your pharmacy name below to tell us how we’re doing.

Preparing for School Vaccinations with a Bleeding Disorder

Tue, 23 Jun 2026 11:18:00 EST

As the school year approaches, families of children with bleeding disorders should plan ahead for required vaccinations. While vaccines are essential for good health, children with conditions such as hemophilia or von Willebrand disease need additional considerations to ensure safety.

Before vaccination, families should consult their child’s healthcare team, including hematologists or hemophilia treatment centers, to assess individual bleeding risks. Providers may consider the severity of the disorder, the presence of inhibitors, the type of vaccine, and the safest injection site. In some cases, factor replacement therapy before vaccination may be recommended to reduce bleeding risk.

Parents and caregivers should be educated on potential bleeding complications and know when to seek medical care. Developing an individualized care plan with healthcare providers can help guide safe vaccination and support coordination with schools.

Open communication with school nurses and staff is also key. With careful planning, collaboration, and informed decision-making, families can help ensure children with bleeding disorders receive necessary vaccinations safely as they begin a new school year.

Thank You for a Successful Hops Savannah Event!

Tue, 23 Jun 2026 11:17:00 EST

Thank you to everyone who came out with their crew to raise a glass for the cure with us! You helped make our second annual Hops for Hemophilia fundraiser in Savannah an incredible success! Your contributions helped us raise 18K for bleeding disorder research.

We had 60 people support us at Service Brewing Co., where everyone enjoyed music, playing games, great food, and of course, beer! More importantly, everyone came together, while raising money to help fund research for a cure for hemophilia and other bleeding disorders.

Join Us at Hops for Hemophilia in Marietta

Grab your crew and “hop” on over to Glover Park Brewery to raise a glass, raise awareness, and raise funds for bleeding disorder research at Hops for Hemophilia on August 8th from 2:00 p.m. to 6:00 p.m. We are excited to once again bring you a wonderful afternoon with beer, non-alcoholic drinks, music, delicious food, games, door prizes, and community. We can’t wait to see YOU there!

Tickets and sponsorships are available on the event website. Purchase your tickets and sponsorships today!

If you have questions about sponsorship opportunities, please email sponsorship@hog.org or call 470-621-0605.

Educate Your Child's School on Bleeding Disorders

Tue, 23 Jun 2026 11:15:00 EST

Did you know Hemophilia of Georgia outreach nurses can help educate your child’s school or daycare?
We offer school in-services for teachers and staff to help them understand bleeding disorders and how to respond in an emergency. These sessions are an important step in creating a safe, supportive environment so your child can thrive both academically and socially.

Our team can:

Provide education on bleeding disorders and treatment basics
Review signs and symptoms of a bleed and when to act
Help staff understand emergency response and care plans
Answer questions and build confidence in supporting your child

Getting started is easy:

Contact your outreach nurse
Not sure who your nurse is? Contact Erica Hunter at 770-518-8272, and she’ll help connect you
You’ll be asked to complete a permission form so we can coordinate directly with the school or daycare
Prefer to share information yourself? We can provide an education packet for you to give to school staff

We’re here to support you every step of the way and help ensure your child has a safe, happy, and successful school year.

Travel Tips for People with Bleeding Disorders

Tue, 23 Jun 2026 11:03:00 EST

Wherever you and your family are going to have fun this summer, there are several things you can do to make your travels safer and more convenient if you have a bleeding disorder. Below are some tips that can help:

Carry your medication with you.
Any traveler who has a health problem needs to carry a letter from their doctor. The letter should tell what the health problem is and how it is treated. Your HTC can give you this letter. It should tell what kind of bleeding disorder you have and its severity (mild, moderate, or severe). If you are carrying factor and an infusion kit (syringes, needles, etc.), the letter should explain why you are doing this. Lastly, it should tell what to do in an emergency.
Always wear a MedicAlert® necklace or bracelet. This could save your life. Emergency workers are trained to look for MedicAlert® tags. Letters or cards in wallets can be lost.
Hemophilia of Georgia provides free factor travel kits to our pharmacy patients. You can request a free kit when you place your order online.

Complete details, more tips, and a handy traveler’s checklist are available in the Hemophilia, von Willebrand Disease, & Platelet Disorders Handbook.

Thank You for Coming Out to Support Trot to Clot

Tue, 23 Jun 2026 11:01:00 EST

THANK YOU to all our participants for coming out to the 2026 Trot to Clot. We are delighted everyone had a great time while raising money for our global impact program that helps people with bleeding disorders in underserved communities worldwide. It was wonderful to see children and their families out enjoying the fresh air, music, and fun activities at The Battery at Truist Park!

We are excited to announce our organization raised over $104,000 for people with bleeding disorders worldwide! We also had 245 participants, 17 fundraising teams, and 15 volunteers. A special thank you to our corporate sponsors, team captains, fundraisers, runners, walkers, volunteers, and our donors— we couldn't have done it without you! YOU made this event a complete success!

World Federation of Hemophilia Global National Member Training and World Congress

Tue, 23 Jun 2026 10:59:00 EST

Members of the bleeding disorder community from around the world gathered in Kuala Lumpur, Maylasia on April 17-22 for the World Federation of Hemophilia’s (WFH) Global National Member Organization Training (GNMOT) and World Congress. Hemophilia of Georgia (HoG) was well represented by members of the senior leadership, clinical, and community engagement teams as well as two Youth Fellows who grew up attending Camp Wannaklot and are now engaged volunteers.

The GNMOT brought together leaders from over 130 countries for dynamic, hands-on sessions on April 17 and 18. HoG’s own Alesha Wright and Maggie Olson-Conquest led an engaging workshop titled “Volunteer Engagement and Retention” and HoG’s Chief Policy and Compliance Officer Deniece Chevannes facilitated a session in Spanish called “Effective Advocacy Strategies” and hosted a panel titled “Youth Engagement.” Other sessions at GNMOT covered governance, leadership, and organizational health. During the GNMOT the Youth Fellows completed their two yearlong WFH Youth Leadership Training program.

After the GNMOT concluded, all participants joined others in the community for the World Congress for four days of plenaries, workshops, poster sessions and networking. During the World Congress Deniece Chevannes chaired a session titled “Access to Care — Not Just Access to Treatment”, and all members of the HoG team facilitated a table in the exhibit hall to promote Hemophilia of Georgia and to share our knowledge with members of the bleeding disorder community from around the world.

HoG’s Youth Fellows were incredibly grateful for the opportunity to attend the GNMOT and World Congress. Here’s what they had to say:

“Attending the Global NMO Training meant a lot to me. Growing up with a severe bleeding disorder isn’t easy, but I believe one day it will be. I always try my best to remind others how important it is to tell their story and advocate for themselves. Reconnecting with the global bleeding disorder community reminded me how fortunate I am regarding access to care. I couldn’t be more grateful to represent Hemophilia of Georgia.”
“Attending the GNMOT and World Congress means building lifelong connections and gaining the skills needed to become a stronger advocate.”
“I will bring what I learned from other youth leaders back to Hemophilia of Georgia! I want to use these ideas to strengthen our programs, help more patients the way HoG has helped me, and provide the same support and sense of belonging I received growing up being a part of the HoG community!”
“With the knowledge and experience I’ve gained, I hope to apply these skills in my everyday workplace and within my NMO to advocate effectively and educate others.”

This experience reflects HoG’s ongoing commitment to building the next generation of leaders and strengthening the future of care and advocacy, both here in Georgia and around the globe.

A Team Approach That Made All the Difference for This Patient

Tue, 23 Jun 2026 10:57:00 EST

When Hikie was told he needed a surgical procedure, his first thought wasn’t about the operating room—it was about bleeding risk. Like many people living with a bleeding disorder, Hikie knew that even routine medical procedures can carry serious complications without the right preparation. His experience, however, unfolded very differently, and far better, thanks to seamless collaboration between his physician, Hemophilia of Georgia nurses and pharmacists, and the Hemophilia Treatment Center (HTC).

As soon as his doctor recommended surgery, Hikie requested that she consult with Dr. Kempton regarding his bleeding risk. “Within a couple of days, Dr. Kempton had reviewed everything, approved the procedure, and provided a detailed treatment protocol,” Hikie shared. That quick response set the tone for what would become a remarkable example of coordinated care in action.

Next came the logistics—often the most stressful part of care for patients. Hemophilia of Georgia’s pharmacy team worked swiftly to secure insurance approval and deliver the necessary medication to Hikie’s home within a week. For Hikie, this was a huge relief. “Everything was handled smoothly and efficiently,” he said. “I didn’t have to chase paperwork or worry about delays.”

Because Hikie does not self-infuse, the plan required another layer of teamwork. The HTC Nurse Coordinator joined forces with Hemophilia of Georgia’s Director of Clinical Coordination and Outreach Nursing team to create an infusion schedule that matched Dr. Kempton’s protocol precisely. Nurses visited Hikie at home for four consecutive days (Friday through Monday) making sure every dose was delivered safely and on time.

“Each visit went off without a hitch,” Hikie recalled. “The nurses were professional, reassuring, and clearly communicated with one another. I always felt informed and supported.”

The results spoke for themselves. Despite the known risks associated with the type of procedure he underwent, Hikie experienced no bleeding complications at all. None.

“With all of this wonderful attention, I experienced NONE of the bleeding issues that often occur with this procedure—none,” he emphasized. “That outcome is directly tied to the level of coordination and care provided.”

For Hikie, the experience changed how he views healthcare partnerships. “It’s one thing to hear about the great services provided by Hemophilia of Georgia,” he said. “It’s an entirely different thing to experience it firsthand.”

Today, Hikie looks back on his procedure not with anxiety, but with gratitude. Gratitude for a doctor who listened. For specialists who responded quickly. For pharmacists who navigated approvals and delivery. And for nurses who showed up when he needed them most.

“I’m grateful to everyone involved,” Hikie said simply. “This team approach made all the difference.”

HoG Office & Pharmacies Closed for Memorial Day

Tue, 28 Apr 2026 11:52:00 EST

To ensure you have enough medication and supplies on hand, please remember to place your orders ahead of the upcoming Memorial Day holiday, as our offices will be closed May 25. Place your pharmacy orders early by visiting us online or calling us at 770-518-8272. The HoG and Beacon pharmacies will be closed on the dates listed below.

Register for Trot to Clot- May 16th at The Battery!

Tue, 28 Apr 2026 11:50:00 EST

Register to join Hemophilia of Georgia for Trot to Clot, a 5K Walk/Run, on Saturday, May 16, 2026, at The Battery at Truist Park! This year, funds raised for Trot to Clot are supporting our global impact program to help people with bleeding disorders in underserved communities worldwide. We know it takes more than medicine to improve lives - it takes education, leadership, and community. Come out and bring your friends, family, and colleagues and help us make a difference in the lives of people with bleeding disorders!

A special thank you to our Statewide Strategic Partner, Ameris Bank, for their generosity, partnership, and support of all our fundraising events this year!

There are several opportunities for companies to support the Trot to Clot Walk/Run by becoming a corporate sponsor. If you have questions, please contact sponsorship@hog.org. Registration and event information is available on our website.

Spring Family Camp � Education, Connection, Community, and Fun!

Tue, 28 Apr 2026 11:47:00 EST

Twenty-three families enjoyed a weekend of exciting and engaging activities while bonding and connecting with other families affected by bleeding disorders at Hemophilia of Georgia’s Spring Family Camp held at Camp Will-A-Way in Winder, Georgia on March 27-29, 2026.

The lovely spring weather added to the enjoyment of the weekend surrounded by the lake and the beautiful campgrounds! After families arrived, settled in, and enjoyed dinner together, they were able to spend some time familiarizing themselves with the campgrounds, making smores, and playing some fun trivia games while gathered around the campfire. After the sun went down and bedtime was nearing, families could head to their cabins or wind down with a movie under the amazing night sky!

Each morning, families were able to begin their day by fishing on the lake or taking a relaxing nature walk. After breakfast on Saturday, families participated in two hours of interactive education. Everyone gathered in the gym for a session with Dr. Cox who spoke about the importance of physical therapy and staying active for someone with a bleeding disorder. This conversation included time for questions and group exercises. Next, moms stayed in the gym for a conversation with Dr. Thaxton about the importance of caring for yourself so you can better care for others. Meanwhile, the rest of the camp engaged in fun activities with their HoG buddies around camp and discussed ways that activities can be modified to be safer for people with bleeding disorders.

After lunch, families had a great time participating in fun activities such as boating, rock climbing, ziplining, horseback riding, arts & crafts, archery, lawn games, or just chilling in the hammock village that HoG staff built! These are just a few of the many educational, empowering, and often life-changing offerings that are provided at Family Camp! Sunday morning, we wrapped up a fantastic weekend with breakfast and some more fun family activities around camp!

It was an exciting and successful weekend! A huge shout-out and thank you to all the volunteers and staff who came out to support family camp! Because of all of you, our families had a fabulous weekend learning, bonding, and engaging with the community. We could not do it without all your support!

Spring is a Great Time to Review HoG and Beacon Pharmacy Services

Tue, 28 Apr 2026 11:43:00 EST

Spring is in full bloom! Now is a great time to evaluate your medications and review the specialized care services our patients receive at no extra cost. Our pharmacists play a critical role in patient’s comprehensive care team and provide needed bleeding disorder medications and home-infusion supplies. We offer the following services to help take the hassle out of treating and managing your chronic condition, improve health outcomes, and make your life a little easier:

Personalized care through Medication Therapy Management Pharmacists
Routine assessments
Insurance coordination to decrease the financial burden to our patients
Access to our specialized pharmacists and medication services, plus a 24/7 after hour on call hotline
Spanish speaking staff available (Personal que habla español disponible)
Prescription reminder program and printable treatment calendars
Free safety and prevention products such as helmets and knee pads
FedEx priority overnight shipping to home or office
Pharmaceutical recall notifications
Ordering online is so easy!
Hemophilia of Georgia is a Medicare and Medicaid provider and has contracts with many private insurance companies and our insurance billing services staff helps patients understand their insurance coverage and works closely with patients and their insurance companies.
Hemophilia of Georgia administers a federal 340B program that allows us to purchase bleeding disorder medications at a lower cost. We utilize those savings to provide programs and clinical services to the bleeding disorder community. Bottom line: medications purchased through our pharmacies allow us to give back and serve the community better. It is that simple!

Our pharmacies are dually accredited by URAC and the ACHC and we take great pride in providing the very best care possible. We are continually enhancing and adapting our services to meet the needs of the bleeding disorder community. We know it takes more than medicine to care for our patients and keep them healthy. We look forward to serving you!

Escape to Paradise with HoG at Camp Wannaklot This Summer!

Tue, 28 Apr 2026 11:41:00 EST

Pack your sunscreen and your sense of adventure—Hemophilia of Georgia is inviting all dedicated volunteers to join us in paradise at Camp Wannaklot this summer! Whether you can join us for the full week, multiple days, or even just one, we would love to welcome you into our island of joy, community, and connection.

Camp Wannaklot is a weeklong summer camp dedicated to youth ages 7–17 who have a bleeding disorder and is held at Camp Twin Lakes Will A Way. Throughout the week, we’ll dive into a mix of fun and enriching activities including swimming, archery, climbing, pottery, cooking, fishing, crafts, bleeding disorder education, and more. Each day offers a new chance to create memories, build confidence, and form meaningful bonds with campers, volunteers, and staff.

Sign up to volunteer today and help us turn Camp Wannaklot into a true paradise for children living with a bleeding disorder!

When: June 7-12, 2026; Camp will start for volunteers on June 6, 2025.
Where: Camp Will-A-Way in Winder, GA
Sign-up by May 17th: www.hog.org/paradise

Tee Off for Bleeding Disorders Golf Tournament Hits a Hole in One!

Tue, 28 Apr 2026 11:17:00 EST

Thank you to our partners and the many golfers from across the country who came out and teed up to raise money for research for a cure at the Annual Tee Off for Bleeding Disorders Golf Tournament at Indian Hills Country Club in Marietta, GA. The fresh spring weather, beautiful sunshine, and smiling faces made the day perfect for playing golf!

We are grateful to the many steadfast supporters and volunteers who work year after year to make this event possible and such an incredible success! You helped make this year’s event wonderful and your contributions helped support bleeding disorder research for a cure. We could not do this without you.

Together, we raised over $75,000 for bleeding disorder research! Once again, thank you to our golfers, volunteers, partners, and staff for making this event happen seamlessly.

A big THANK YOU to our many corporate sponsors for their continued partnership and support:
Ameris Bank

Bayer Healthcare

Brown & Co. Jewelers

CSL Behring

Focused Financial Group

Gallagher

HEMA Biologics

Kennesaw Business Association

Merrill Lynch

Nelson Mullins

Novo Nordisk

Octapharma

Sanofi

The Grant Partners

Smith Gambrell & Russell

Takeda

SK Commercial Realty

Zurn Plumbing Service

Celebrating HoG Nurses During National Nurses Week May 6�12

Tue, 28 Apr 2026 11:15:00 EST

National Nurses Week begins each year on May 6 and ends on May 12, Florence Nightingale's birthday and International Nurses Day. Just as Nightingale carried her lamp through the night to check on wounded soldiers, today’s nurses have shined their light on everyone in our community.

While our celebration of this important profession is in May, every day is a great day to celebrate nurses and show them our appreciation! This year’s theme for International Nurses Day is “Our Nurses. Our Future. Empowered Nurses Save Lives,” This theme underscores how crucial nurses are in delivering trusted, compassionate primary care that improves patient outcomes and helps health systems respond to the world’s most pressing health issues. We appreciate everything that Hemophilia of Georgia Nurses do every day and want to express our love and support for everything they do for our community!

A big shout out to HoG’s amazing nursing staff: Stephanie Matz, Vice President of Clinical Services; Jennifer Crabbe, Director of Nursing; Rebecca Babkiewicz, Director of Telehealth; Courtney Gustin, Clinical Coordinator; and our AMAZING team of Outreach Nurses: Katrina Bennett, Alicia Casucci, Karen Clark, Amen Detti, Theresa Knapp, Hollie Macenczak, and Shelby Stroughter. Additionally, we celebrate Julie Hayman, Vice President of Payer Relations and Revenue Cycle, who is a registered nurse.

National Bleeding Disorders Foundation (NBDF) Washington Days 2026

Tue, 28 Apr 2026 11:12:00 EST

Hemophilia of Georgia (HoG) continues its advocacy efforts alongside advocates nationwide, joining together in Washington, D.C. for the National Bleeding Disorders Foundation’s (NBDF) 2026 Washington Days from March 4–6. This year’s delegation included Deniece Chevannes, Chief Policy & Compliance Officer; Rebecca Babkiewicz, Director of Telehealth; Stephanie Rehberg, Communications Manager; Jennifer Pharaoh, HoG’s Washington Lobbyist; and community advocates Jesús V., Billy T., and the Serbinski family. HoG’s advocates met with their respective Representatives and Senators to help educate legislators and their staff on bleeding disorders. HoG staff provided information about the work done by our organization to support those with bleeding disorders throughout Georgia. Our group of patient advocates bravely shared their personal bleeding disorder stories, demonstrating why legislative support is essential for our community.

Our advocates urged members of Congress to focus on legislation that will improve patient access to care, beginning with strengthening and broadening the use of telehealth. Many patients across Georgia struggle to attend their Hemophilia Treatment Center (HTC) appointments due to distance, commuting challenges, and schedule limitations. To help overcome these barriers, HoG partnered with the Augusta Adult HTC in 2021 to launch our Comprehensive Care Model Telehealth Program. During Washington Days, our staff and volunteers shared data and stories illustrating how access to virtual care has been life changing for individuals who previously went years without the treatment necessary to manage their bleeding disorder. HoG encouraged members of Congress to work toward a permanent extension of the telehealth flexibilities established during the COVID 19 pandemic, emphasizing that telehealth has become an essential and irreplaceable component of modern healthcare delivery.

In addition to telehealth, our group advocated to protect and fund the federal health programs that support research, public health surveillance, and comprehensive care at Hemophilia Treatment Centers. Federal bleeding disorder programs within the CDC and HRSA provide critical funding that support specialized care teams, research, and public health monitoring, all of which directly impact quality of life for those with bleeding disorders. Our delegation also urged lawmakers to support the Help Ensure Lower Patient (HELP) Copays Act to end insurer practices, such as copay accumulator adjustment programs, that harm people who rely on specialty medications by preventing copay assistance from counting toward their deductibles and out-of-pocket maximums.

HoG also advocated for the FED UP with Bleeding Disorders Act, which aims to improve recognition, diagnosis, and support for underserved populations—particularly women—whose bleeding disorders often go unnoticed or misunderstood.

Personal stories carry profound weight in swaying congressional action. If you or your family have encountered challenges due to copay accumulator programs, please reach out to Hemophilia of Georgia's Senior Director of Advocacy, Michelle Conde, at maconde@hog.org. Sharing personal experiences is instrumental in compelling lawmakers to enact meaningful change.

Trot to Clot Benefits People with Bleeding Disorders Worldwide

Thu, 26 Feb 2026 11:43:00 EST

Join Hemophilia of Georgia for Trot to Clot, a 5K Walk/Run, on Saturday, May 16, 2026, at The Battery at Truist Park! This year, funds raised for Trot to Clot are supporting our global impact program to help people with bleeding disorders in underserved communities worldwide. We know it takes more than medicine to improve lives - it takes education, leadership, and community. Come out and bring your friends, family, and colleagues and help us make a difference in the lives of people with bleeding disorders!

There are several opportunities for companies to support the Trot to Clot Walk/Run by becoming a corporate sponsor. If you have questions, please contact sponsorship@hog.org. Registration and event information is now available on our website.

Teen Retreat 2026 � Charlotte, NC

Thu, 26 Feb 2026 11:42:00 EST

We spent the weekend enjoying beautiful Camp Thunderbird in Lake Wylie, SC and doing a few fun activities in Charlotte, NC. Teens got the choice to participate in a cookie decorating class or compete in a pit crew teambuilding exercise at the NASCAR Hall of Fame. To complete the evening in Charlotte, the teens headed to the food hall for dinner and fun with their friends and mentors.

While the group had tons of fun, HoG also provided education throughout the weekend. On Saturday night, everyone gathered and played a rousing game of ThinkFast Interactive trivia filled with pop culture and bleeding disorder questions. On Sunday morning, older teens took a first aid class. The younger teens played the Bleeding Disorder Game of Life and then broke out into two groups where they learned about the genetics of bleeding disorders and menstrual health.

Since Teen Retreat takes place over MLK weekend, we include a service component to benefit the area we visit. This year, our teens put together activity bags for Atrium Health Levine Children’s Hospital in Charlotte, NC.

Teens concluded the weekend by providing feedback about their experiences. They loved getting to connect with their peers in the HoG community, trying new experiences, and gaining valuable education they can carry with them for the future.

If you have questions about HoG’s teen programs, please reach out to Kristi Fulford Director of Camp and Client Events at kffulford@hog.org or 770-518-8272.

Join Us in Raising Awareness and Making a Global Impact

Thu, 26 Feb 2026 11:41:00 EST

Hemophilia of Georgia is excited to announce two important opportunities to raise awareness and support the bleeding disorder community: Bleeding Disorders Awareness Month (BDAM) in March and World Hemophilia Day on April 17. Both campaigns focus on advocacy, education, and fundraising to support our global impact program to help people with bleeding disorders in underserved communities worldwide.

March is Bleeding Disorders Awareness Month, a time to honor our community and promote early diagnosis and advocacy. We know it takes more than medicine to improve lives - it takes education, leadership, and community.

World Hemophilia Day, led by the World Federation of Hemophilia (WFH), is observed on April 17. This year’s theme, “Diagnosis: First Steps to Care,” emphasizes the critical importance of diagnosis —the essential first step in treatment and care. WFH estimates that over three-quarters of people with hemophilia worldwide remain undiagnosed. Together, we can change that.

How you can help:

Donate to our Bleeding Disorders Awareness Month or World Hemophilia Day campaign to support global aid efforts.
Share your story on social media using hashtags like #BleedingDisordersAwareness, #BDAM, and #Hemophilia. Tag us so we can amplify your voice!
Engage with HoG’s posts on Facebook, Instagram, LinkedIn, and X (formerly Twitter).

By raising awareness and bringing bleeding disorders to the attention of policymakers, we can increase access to care and treatment. These global efforts are only possible because of generous donations from supporters like you.

Let’s come together this March and April to make a difference. Donate, share, and spread the word!