It takes more than medicine...


Horizons in Hemophilia, October 2019


happy balloons with smiling faces on them

Congratulations to Our Newest Mighty Stickers!

By Olivia Kemp, RN, and Carlos Branham, RN | October 17, 2019

We're excited to announce the latest members of Hemophilia of Georgia's (HoG's) Mighty Sticker Club. Congratulations to Bairon and Jonathan for mastering the steps of self-infusion. These steps include mixing the factor, selecting a vein, sticking oneself, infusing the factor and completing a treatment calendar. More...

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group drinking

A Big Thank You for a Successful Hops Event

By Sarah Weikert, Director of Development | October 17, 2019

Thank you for raising a glass with us and making this year's Hops for Hemophilia the most successful one to date. Your contributions helped raised more than $13,000 for inherited bleeding disorder research. More...

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Infographic hemophilia

WFH Has Spearheaded a Scientific Study Updating the Prevalence of Hemophilia to Higher Numbers than Previously Estimated

By Donna Coffin, Director, Research & Public Policy, World Federation of Hemophilia | October 17, 2019

The World Federation of Hemophilia (WFH) has spearheaded a scientific study updating the prevalence of hemophilia to higher numbers than previously estimated and providing, for the first time, estimates of the prevalence of hemophilia at birth (Annals of Internal Medicine, 10 September 2019). More...

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silhouettes of people next to a heart

Open Enrollment for ACA Marketplace Health Insurance Starts Nov. 1

By Theresa Schaffer, LCSW, Director of Social Work | October 17, 2019

Open enrollment for the Affordable Care Act (ACA) marketplace health insurance plans, also known as "Obamacare," runs from Nov. 1 to Dec. 15. Insurance coverage will begin on Jan. 1, 2020. It is highly recommended that you begin researching and selecting a plan early. More...

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group teaching at table

LITs – Learning to Lead by Doing

By Jeff Cornett, RN, MSN, Vice President of Research and Public Policy | October 17, 2019

This past July, Hemophilia of Georgia's Leaders in Training (LITs) met during Camp Wannaklot to plan their activities for the year. Three returning LITs were joined by nine new members for three mornings of self-assessments, team building games and brainstorming on projects. It's all designed so that the teens learn leadership and communication skills that they can immediately put into practice. More...

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doctor talking to child

Healthcare Transition Guidelines for 5- to 8-year-olds with Inherited Bleeding Disorders

By Theresa Schaffer, LCSW, Director of Social Work | October 17, 2019

National Hemophilia Foundation's Medical and Scientific Advisory Council has established healthcare transition guidelines for the bleeding disorders community. The Hemophilia of Georgia (HoG) Social Work team wants to help you understand the key transition guidelines for various age groups. More...

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Father and son in pool

HoG’s Fall Family Camp – Warm Weather and Warm Hospitality

By Jeff Cornett, RN, MSN, Vice President of Research and Public Policy | October 17, 2019

On Sept. 20 - 22, 146 people from 31 families attended Hemophilia of Georgia's Fall Family Camp at Camp Twin Lakes (CTL) in Rutledge, Georgia. The heatwave that brought record-high temperatures relented that weekend, giving families perfect weather for outside activities including the swimming pool, which is usually too cold by late September. More...

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