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The VWD & Platelet Disorders Handbook
This easy-to-read handbook is a comprehensive resource guide covering von Willebrand Disease, Bernard-Soulier Syndrome, Glanzmann's Thrombasthenia, and Platelet Storage Pool Disorders.
The VWD and Platelet Disorder Handbook provides up-to-date information on:
- Understanding how blood works
- Testing for VWD and platelet disorders
- Treating and preventing bleeding
- The comprehensive care system
- Bleeding disorder resources
- Genetics
- Disease subtypes
- Feelings and reactions
- Paying for health care
It is estimated that as many as one in every hundred people has von Willebrand Disease, making it the most common bleeding disorder. In contrast, the platelet disorders covered in the new handbook, Bernard-Soulier Syndrome, Glanzmann's Thrombasthenia, and Platelet Storage Pool Disorders, are among the rarest genetic conditions.
A copy of The VWD & Platelet Disorder Handbook will be delivered by HoG outreach nurses to each household in Georgia affected by VWD or one of the platelet disorders covered in the book.
Copies are also available to donors who make a contribution to Hemophilia of Georgia. Special discounted donation rates are available for individuals who have bleeding disorders as well as for HTC staff, non-profit hemophilia chapter staff, and medical providers. Learn more about handbook donations.
