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8607 Roberts Drive, Suite 150 Sandy Springs, GA 30350-2237

(770) 518-8272phone    (770) 518-3310fax

8607 Roberts Drive, Suite 150 Sandy Springs, GA 30350-2237

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Bleeding Disorders

Hemophilia of Georgia helps people who have inherited (genetic) bleeding disorders including hemophilia, von Willebrand Disease, and certain platelet disorders. All of these conditions are present from birth and last a person's whole life. While there is treatment, there is no cure.

Von Willebrand Disease (VWD) is believed to be the most common bleeding disorder, affecting as many as 1 in every 100 people. Hemophilia is much rarer - there are only about 20,000 people in the United States who have Hemophilia A (factor VIII deficiency) or Hemophilia B (factor IX deficiency). Rarer still are the inherited platelet disorders. These include Bernard-Soulier Syndrome, Glanzmann's Thrombasthenia, and Platelet Storage Pool Deficiencies.

This website has basic information about these bleeding disorders. More detailed information can be found in The Hemophilia, von Willebrand Disease & Platelet Disorders Handbook.  Hemophilia of Georgia also has bleeding disorder experts that are available to make educational presentations throughout the state. To schedule a presentation for your civic club, school, or faith community, please contact Hemophilia of Georgia at (770) 518-8272 or mail@hog.org.

Additional Resources

The Canadian Hemophilia Society and the World Federation of Hemophilia are good resources on the web to read about bleeding disorders. The National Hemophilia Foundation offers HANDI, an information resource center with specialists who can answer questions about bleeding disorders and provide written materials. They are available by phone Monday through Friday, 9 a.m. to 5:30 p.m. EST. Their toll-free number is 1-800-42HANDI. HANDI also responds to e-mail requests at handi@hemophilia.org.

2018 NHF 2018 NHF Award of Excellence Logo

 
 
The National Hemophilia Foundation Chapter of Excellence Award is given to chapters that demonstrate excellence in achievement of standards and best practices evaluated through a rigorous chapter review process. To receive the Chapter of Excellence Award, a chapter must score 85 percent or greater in five different areas.
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