Programs and Services
Hemophilia of Georgia’s comprehensive programs and services help meet the needs and challenges facing the bleeding disorder community. Since inherited bleeding disorders affect not only an individual, but also his or her entire family, HoG offers programs and services for every member of the family.
Hemophilia of Georgia exists so that people affected by bleeding disorders can live as normally and productively as possible. The belief that "it takes more than medicine" to achieve this mission is the foundation upon which Hemophilia of Georgia has built an extensive array of support services, including:
- Accurate, reliable, on-time home delivery service which provides infusion supplies, factor and clotting medications, and other items you might need, such as insulated travel kits, icers, compression wraps, and bicycle helmets.
- Product safety assured by strict product recall procedures
- Assistance with insurance and out-of-pocket medical costs, based on financial need
- Insurance coordination, which includes filing insurance claims, Medicare and Medicaid claims, and assistance with other insurance issues
- Support and education from a team of outreach nurses
- Presentations on bleeding disorders for schools, day care centers, and medical professionals
- Genetic counseling and information about carrier testing
- Home infusion training and follow-up for interested families
- Information on treatments and research protocols for HIV/AIDS and hepatitis
- Distribution of helmets, knee pads and elbow pads to clients through the age of 17
- Distribution of insulated travel kits and supply boxes
- Assistance with personal and financial issues from a team of social workers
- Funds to purchase MedicAlert® bracelets, based on financial need
- Resources to help with the expense of a health insurance policy, based on financial need
- Assistance with some clinic charges not covered by insurance or Medicaid, based on financial need
- Help with transportation and/or lodging for clinic visits, based on financial need
- Scholarships for qualified clients who wish to further their education after high school
- Career-option counseling and vocational testing referrals for interested clients.
- Assistance with tutoring for clients in grades K through 12.
- Financial support for the comprehensive care of bleeding disorders in adults and children, as well the purchase of equipment and funding of staff and educational materials for clinics at Georgia hemophilia treatment centers
- Funding of research for better treatments and a cure.
Educational Services and Information
- An assortment of literature about hemophilia, von Willebrand Disease, hepatitis and HIV available to clients and other Georgians
- Hemophilia of Georgia publishes The Hemophilia, von Willebrand Disease & Platelet Disorders Handbook, a free online resource for everyone in the bleeding disorder community.
- Guidelines for treatment of bleeding disorders for local emergency rooms and physicians
- A physician-to-physician hotline available 24 hours per day for Georgia physicians who need emergency treatment information
- An award-winning newsletter, Horizons in Hemophilia.
- Membership in the National Hemophilia Foundation and the World Federation of Hemophilia.
Activities and Programs
- Community advocacy and legislative issues
- Camp Wannaklot, a summer camp program for young people ages 7-17
- Family Camp, an opportunity for the whole family to share the camping experience
- Peer support and education including programs for men, women, teens, and parents
- Volunteer opportunities at fundraising events and educational programs, such as Trot to Clot, Hit'em for Hemophilia, Camp Wannaklot, and on special event committees.