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HoG Day Georgia Reps at Capital

Georgia General Assembly Recognized Feb. 18 as ‘Hemophilia of Georgia Day’ at the State Capitol

By Jeff Cornett, RN MSN, Vice President of Research and Public Policy

Published February 13, 2020

 

The Georgia legislature issued a resolution that recognized Feb. 18, 2020, as “Hemophilia of Georgia Day” at the State Capitol. The resolution was sponsored by Representatives Josh McLaurin (Sandy Springs), Angelika Kausche (Johns Creek), Matthew Wilson (Brookhaven), Betsy Holland (Atlanta), Deborah Silcox (Sandy Springs), and Shelly Hutchinson (Snellville).

HoG staff were at the Capitol on Feb. 18. We had an exhibit table in the afternoon in the south wing. 

Here is the resolution text, which is also available on the Georgia General Assembly website.

WHEREAS,  each  year,  thousands  of  Americans,  including  Georgians,  are  impacted  by hemophilia and other bleeding disorders; and WHEREAS, Hemophilia of Georgia, a nonprofit organization based in Sandy Springs, is dedicated  to  providing  services  and  support  to  Georgians  who  have  hemophilia,  von Willebrand Disease, and other inherited bleeding disorders; and WHEREAS, Hemophilia of Georgia's mission for more than 40 years has been to "exist so that people affected by bleeding disorders live as normally and productively as possible"; and WHEREAS, Hemophilia of Georgia is the only organization in Georgia offering medication, outreach nursing and social work services, clinical and research funding, and educational and support activities to these individuals to enhance their care and quality of life; and WHEREAS, Hemophilia of Georgia employs pharmacists, nurses, social workers, and others to carry out the organization's work and mission; and WHEREAS, Hemophilia of Georgia operates successful pharmacies which have received accreditation  from  the  Accreditation  Commission  for  Health  Care,  Inc.,  demonstrating  a commitment to high-quality standards of care; and WHEREAS, Hemophilia of Georgia specifically provides children with these disorders the ability to attend summer camp at Camp Wannaklot; publishes an award-wining newsletter for  clients  and  their  families  to  keep  up-to-date  with  advances  on  treatment;  produces Protocols for the Treatment of Hemophilia and von Willebrand Disease for physicians and other  health  care  providers;  offers  financial  support  for  hemophilia  treatment  centers throughout Georgia to ensure that the treatment centers are fully staffed and equipped; and invests in critical research for these bleeding disorders and their associated complications; and WHEREAS, Hemophilia of Georgia works with the state's Hemophilia Advisory Board as an advisor on the standards of care and treatment for individuals with hemophilia and other bleeding disorders; and WHEREAS,  Hemophilia  of  Georgia  partners  with  many  entities,  including  St.  Jude Children's Research Hospital and the Hemophilia of Georgia Center for Bleeding & Clotting Disorders of Emory, for research to find a cure for hemophilia; and WHEREAS, Hemophilia of Georgia's reach is beyond the borders of Georgia as a supporter of the World Federation of Hemophilia, working with that entity to provide technical support to hemophilia organizations in developing countries; and WHEREAS,  Hemophilia  of  Georgia  serves  as  a  trusted  resource  to  many  health  care providers  and  insurers  by  providing  each  with  training  on  bleeding  disorders,  including appropriate  care  and  treatment,  and  the  organization  is  recognized  nationally  and internationally for its work; and WHEREAS, it is abundantly fitting and proper that the outstanding contributions of this extraordinary organization be appropriately recognized. NOW, THEREFORE, BE IT RESOLVED BY THE HOUSE OF REPRESENTATIVES that the members of this body recognize February 18, 2020, as Hemophilia of Georgia Day at the state capitol; commend Hemophilia of Georgia, its staff and volunteers, and the persons that the organization serves and their past, present, and future work on behalf of those individuals suffering from hemophilia and other bleeding disorders in this state, throughout the nation, and around the world; and encourage all citizens to support Hemophilia of Georgia's efforts to fund initiatives and programs to help those individuals with hemophilia and bleeding disorders.