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Hemophilia of Georgia to Host Trot to Clot Walk/Run on May 21 at Stone Mountain Park

Published May 9, 2011

 

May 9, 2011

Hemophilia of Georgia’s Trot to Clot Walk/Run on May 21, 2011 at Stone Mountain Park will raise money to fund programs and activities for people who have hemophilia, von Willebrand Disease, and other inherited bleeding disorders.  These disorders are very rare, life-long, and require extremely expensive medication that must be injected into a vein.  Hemophilia of Georgia hopes to raise $20,000 through the Trot to Clot Walk/Run.   Several corporate sponsors have already made generous contributions towards this goal.  Baxter Healthcare Corporation and Pfizer are the presenting sponsors of the Trot to Clot Walk/Run while Novo Nordisk is the premier sponsor of the event. Additional corporate sponsors include: CSL Behring, LLC, Green Oaks Dental, and Talecris Biotherapeutics, as well as Cruser & Mitchell, LLP, Families Supporting Families with Hemophilia—Daftari Family, and HealthSource. 

Recognizing that other people affected by bleeding disorders can be a great resource for information and support, Hemophilia of Georgia organizes educational programs and activities for individuals and families. For some people, HoG events provide their only opportunity to meet others who are affected by the same bleeding disorder.  HoG events also provide education about healthy living, treatment advances and best practices, and advocacy. 

According to Vic McCarty, Director of Development for Hemophilia of Georgia, “members of the community and corporations can help ensure that Hemophilia of Georgia can continue to fund programs to bring together clients from around the state for education, information sharing, and relationship-building by supporting the Trot to Clot Walk/Run.”  Individuals who would like to create a team for the walk or join an existing team, or register as individual walkers or runners should register at www.hog.org/trot.  The registration fee is $25 per person and each walker or runner who raises at least $100 will receive a Trot to Clot T-shirt.  Prizes will be awarded to the top individual fundraisers as well as to the first place male and female runners.  People who are unable to participate in walk/run are encouraged to make a donation to support Hemophilia of Georgia.   Corporate sponsorship opportunities are still available as well.  Details are available at www.hog.org/trot.

About Hemophilia of Georgia
Hemophilia of Georgia is a nonprofit organization dedicated to providing services and support for Georgians who have hemophilia, von Willebrand Disease, and other inherited bleeding disorders.  The only agency of its kind in the state, Hemophilia of Georgia works to enhance clients’ care and quality of life while actively pursuing a cure through research funding.  HoG’s nonprofit pharmacy provides convenient home delivery of clotting factor and other medications at competitive prices.  Hemophilia of Georgia exists so that people in Georgia affected by bleeding disorders live as normally and productively as possible.  Additional information is available online at www.hog.org.

About Hemophilia
Hemophilia is a hereditary genetic disorder in which a person’s blood is not able to clot normally. In normal blood, proteins called clotting factors work together to form a clot whenever bleeding occurs. The person with hemophilia lacks or doesn’t have enough of a certain clotting factor so the blood can’t make a clot.  Hemophilia is a very rare disorder, affecting about 17,000 people in the United States.  People with hemophilia stop bleeding by taking an injection of the clotting factor that is missing from their blood.  However, the clotting factor used to treat hemophilia is very expensive.