Hemophilia of Georgia’s Trot to Clot Walk to benefit Georgians with inherited bleeding disorders
June 2, 2010
Hemophilia of Georgia will host the Trot to Clot Hemophilia Walk on Saturday June 12, 2010 at East Cobb Park in Marietta, Georgia. This fun, family-centered walk will raise money to fund programs and activities for people who have hemophilia, von Willebrand Disease, and other inherited bleeding disorders. These disorders are very rare, life-long, and require extremely expensive medication that must be injected into a vein. With more than a week to go before the Trot to Clot Walk, Hemophilia of Georgia has already raised over $13,000 towards the overall goal of $25,000.
According to Vic McCarty, Director of Development for Hemophilia of Georgia, "we are so thankful to our corporate sponsors, particularly our Premier Sponsors Hewlett-Packard, Novo Nordisk, and Talecris Biotherapeutics, for their support." Partner Sponsors include CSL Behring, LLC and Green Oaks Dental, while Patron sponsors include Accredo Health Group and Cruser & Mitchell, LLP.
Members of the community are encouraged to participate in the Trot to Clot Walk to ensure that Hemophilia of Georgia can continue to fund programs to bring together clients from around the state for education, information sharing, and relationship-building. This non-competitive, fun event is for people of all fitness levels. The official walk route is twice around the 1.2 mile trail. However, walkers are encouraged to go at their own pace and to walk as much or as little as is comfortable. There is also a smaller track around the playground that is perfect for young families.
Individuals who would like to create a team for the walk or join an existing team, or register as individual walkers should register at https://trot2clot.dojiggy.com. The registration fee is $25 per person and each walker who raises at least $100 will receive a Trot to Clot Hemophilia Walk T-shirt. People who are unable to participate during the walk are encouraged to make a donation to support the success of the walk.
About Hemophilia of Georgia
Hemophilia of Georgia is a nonprofit organization dedicated to providing services and support for Georgians who have hemophilia, von Willebrand Disease, and other inherited bleeding disorders. The only agency of its kind in the state, Hemophilia of Georgia works to enhance clients' care and quality of life while actively pursuing a cure through research funding. HoG's nonprofit pharmacy provides convenient home delivery of clotting factor and other medications at competitive prices. Hemophilia of Georgia exists so that people in Georgia affected by bleeding disorders live as normally and productively as possible. Additional information is available online at www.hog.org.
About Hemophilia
Hemophilia is a hereditary genetic disorder in which a person's blood is not able to clot normally. In normal blood, proteins called clotting factors work together to form a clot whenever bleeding occurs. The person with hemophilia lacks or doesn't have enough of a certain clotting factor so the blood can't make a clot. Hemophilia is a very rare disorder, affecting about 17,000 people in the United States. People with hemophilia stop bleeding by taking an injection of the clotting factor that is missing from their blood. However, the clotting factor used to treat hemophilia is very expensive. Some patients reach their lifetime insurance maximum at very young ages.