Thorin Can See Clearly Now Thanks To Hemophilia of Georgia!
For a decade now, Hemophilia of Georgia has assisted the family of Anita C., who is both a carrier of hemophilia herself and has a son with Hemophilia. Anita’s son, Thorin was diagnosed with a moderate case of hemophilia when he was born. Anita was surprised when her bright and academically accomplished son started struggling to finish his schoolwork. She knew that it was out of character so when he complained his eyes hurt, she took him to the doctor who discovered he has binocular vision dysfunction. This means his eyes are misaligned and unable to focus together without expensive prescription glasses. The special prism glasses he needed cost $700 and were not covered by insurance. Payment for the glasses was required up-front which would cause Anita significant financial stress. Hemophilia can be costly, and the family already has to budget for large bills in case Thorin has a significant bleed.
Anita’s mother, Wanda, knew Hemophilia of Georgia (HoG) has special programs to assist people with bleeding disorders get the quality, comprehensive care they need. She encouraged Anita to call HoG, but Anita thought there was no way HoG would be able to help since the expense was not directly related to hemophilia. Anita said her mom has always been the type to look out for her family and make sure they got everything they needed. Without Anita knowing, Wanda emailed Hemophilia of Georgia and was later contacted by Thorin’s social worker. She was shocked and relieved to learn that HoG would be able to cover the cost of the glasses!
Thorin is now thriving in school and his family couldn’t be any prouder. He receives home visits from his nurse and social worker who Anita says “are always very kind and patient with him. It takes Thorin a while to get used to the idea that he is going to have a needle put in his arm. He can be a little stubborn, but they are so patient and good at calming him down and easing him into it, instead of trying to rush through it.” When Thorin receives medical care in his hometown, the doctors and nurses are often unfamiliar with hemophilia and fearful of treating him. Being able to avoid spending hours in a waiting room and having knowledgeable and confident medical staff who don’t make him feel different from other kids puts her mind at ease. Her family is so grateful for the comprehensive care they receive from Hemophilia of Georgia that helps keep Thorin happy and healthy. They are also comforted and glad to know HoG can assist in such a wide variety of ways!