Hemophilia of Georgia to Host Inaugural Columbus Trot to Clot to Raise Money for Camp for Kids with Bleeding Disorders
Hemophilia of Georgia will host the inaugural Columbus Trot to Clot 5K Walk and Run event this year at Rotary Park on Saturday, September 28th. This fun, family-centered event will raise money to fund Camp Wannaklot, the only camp in Georgia that gives kids and teens who have inherited bleeding disorders the chance to have fun, learn new skills, and be with other kids just like them. Most importantly, Camp Wannaklot campers learn how to manage their own treatment. Register by September 13th and receive a colorful Trot to Clot t-shirt. Invite your family and friends to come out and cheer you on at this charity event. The first 50 people to register will receive a “goodie bag” which includes a cooler bag and a water bottle, compliments of one of our Presenting Sponsors, CSL Behring.
Children who are born with severe hemophilia usually get three infusions of clotting factor medication every week. That’s more than 2,500 shots by the time they grow up and an average cost of $150,000 annually. These kids aren’t allowed to play contact sports like football because the risk of injury is too great. But at Camp Wannaklot they can ride the giant swing, climb the rock wall, and go down the zip line.
At Camp Wannaklot, held at Camp Twin Lakes in Rutledge, GA, kids who have bleeding disorders learn what they can do. And often, the kids learn how to give themselves those injections of clotting factor so they aren’t dependent on their parents or nurses to get the medication they need to stay healthy.
According to Kirstin Downie, Hemophilia of Georgia Director of Development, “people who participate in the Trot to Clot Walk and Run will help to ensure that Camp Wannaklot will continue to offer kids who have bleeding disorders the opportunity to share new experiences, make new friends, and develop the skills they need to become independent. We hope to raise $70,000 for Camp Wannaklot through the Trot to Clot Walk and Run events this year.”
Hemophilia of Georgia thanks our presenting sponsors: CSL Behring, Baxter, and Pfizer. We would also like to thank our premier sponsor, Biogen Idec and our partner sponsor, Novo Nordisk.
Trot to Clot Walk and Run information and registration details are available online at www.hog.org/trot.
Organizations interested in corporate sponsorship are asked to contact Kirstin Downie at 770-518-8272 or kmdownie@hog.org.
About Hemophilia of Georgia
Hemophilia of Georgia (HoG) is a nonprofit organization dedicated to providing services and support for people who have hemophilia, von Willebrand Disease, and other inherited bleeding disorders. The only agency of its kind in the state, Hemophilia of Georgia works to enhance clients’ care and quality of life while actively pursuing a cure through research funding. HoG’s nonprofit pharmacy provides convenient home delivery of clotting factor and other medications at competitive prices. Hemophilia of Georgia exists so that people affected by bleeding disorders live as normally and productively as possible. Additional information is available online at www.hog.org.
About Hemophilia
Hemophilia is a hereditary genetic disorder in which a person’s blood is not able to clot normally. In normal blood, proteins called clotting factors work together to form a clot whenever bleeding occurs. The person with hemophilia lacks or doesn’t have enough of a certain clotting factor so the blood can’t make a clot. Hemophilia is a very rare disorder, affecting about 17,000 people in the United States. People with hemophilia stop bleeding by taking an injection of the clotting factor that is missing from their blood. However, the clotting factor used to treat hemophilia is very expensive.