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Horizons in Hemophilia, October 2017

 

ACA Open Enrollment Begins November 1, 2017

Get Ready: Open Enrollment for ACA Plans Starts November 1

By: Jeff Cornett RN MSN, Vice President of Research and Public Policy | October 1, 2017

Sign-up for ACA marketplace ("Obamacare") plans runs from November 1 to December 15 for insurance coverage that begins on January 1, 2018. This is half as long as last year's open enrollment period, so it is important to begin selecting a plan early. In addition to less time, consumers will have fewer plans to choose from this year. More...

 

Alnylam Pharmaceuticals Logo

Alnylam Reports Patient Death in Fitusiran Clinical Study

October 1, 2017

Alnylam Pharmaceuticals, Inc. has reported on the death of a hemophilia A patient who had been participating in a Phase 2 open label extension study for the company's investigational therapy fitusiran which is being developed for patients with hemophilia A and B, both with or without inhibitors. Provided by the National Hemophlia Foundation. More...

 

GEN logo

Study Yields Important Findings on the Functions of von Willebrand Factor

October 1, 2017

Researchers at the Boston Children's Program in Cellular and Molecular Medicine and the Harvard Medical School recently made important discoveries relevant to the functioning of von Willebrand factor (VWF). The study, "Flow-induced Elongation of von Willebrand Factor Precedes Tension-Dependent Activation," was published online, August 23, 2017, in the journal Nature Communications. Provided by the National Hemophlia Foundation. More...

 

Prior Authorizations are Becoming the Norm

Prior Authorizations are Becoming the Norm

By: Leigh Carpenter, RPh, Director of Pharmacy | October 1, 2017

Most insurance plans require prior authorizations when filling factor prescriptions. A prior authorization (PA) is a process used by health insurance companies to determine if they will pay for a prescribed procedure, service, or medication. The process is intended to act as a safety and cost-saving measure, although it has received criticism from healthcare providers for being costly and time-consuming. More...

 

Spin for Kids

Ride for Team Camp Wannaklot at the Camp Twin Lakes “Spin for Kids”

By: Anthony, HoG Junior Board Member | October 1, 2017

On October 15, HoG Junior Board Member Sheldon will bike 28 miles to raise money for Camp Wannaklot. He will be joined by HoG outreach nurse Carlos Branham. In partnership with Camp Twin Lakes, Camp Wannaklot has served children with inherited bleeding disorders for 24 years. More...

 

HoG Junior Board Fundraiser

HoG Junior Board Fundraiser

By: HoG Junior Board | October 1, 2017

It's that time of year again. The Hemophilia of Georgia Junior Board is proud to present its annual t-shirt fundraiser. All of the proceeds go to support Camp Wannaklot, Hemophilia of Georgia's summer camp for children with inherited bleeding disorders. More...

 

Meet the Outreach Staff:  Jen Caruso

Meet the Outreach Staff: Jen Caruso

By: Michelle Turkington, Director of Marketing and Communications | October 1, 2017

This month's featured employee is Jen Caruso, BSN, Hemophilia of Georgia Outreach Nurse. Jen has two Bachelor of Science degrees. Her first is in food service management and her second is in nursing. She is also certified in chemotherapy and biotherapy infusions. More...

 

The Golf Club of Georgia and Hit Em for Hemophilia Golf Tournament

Hit ’Em for Hemophilia Golf Tournament

By: Sarah Weikert, Director of Development | October 1, 2017

Celebrating its 35th anniversary, the Hit 'Em for Hemophilia charity golf tournament has raised millions to find a cure. Because of research, treatment has significantly improved and a cure could be closer than ever. There is still work to be done and funding is critical. More...

 

The Faces of Hemophilia

Every Order Makes a Difference

By: Tom Hoover, Vice President of Operations | October 1, 2017

Our pharmacies provide convenient home delivery of clotting factor and infusion-related supplies. 97% of our proceeds go into our programs and services. You make it possible to provide great Georgia programs, like Camp Wannaklot, family camps, teen retreat, client dinners, scholarship programs, and more. Every pharmacy order makes a difference. Thank you. More...

 

HoG Pharmacy Team

Pharmacy Reminder Program

By: Leigh Carpenter, RPh, Director of Pharmacy | October 1, 2017

Did you know about our reminder program? All you need is a simple profile in the My HoG section of our website. Once you have completed the sign up you can select your factor order reminder date. Your link to the order will be right in the email. More...