Horizons in Hemophilia, August 2011
Labor Day Holiday
The Hemophilia of Georgia office, pharmacy, and Beacon Pharmacy will close at 12:00 noon on Friday, September 2 and remain closed on Monday, September 5 for Labor Day. Please make sure you have enough factor on hand for the holiday weekend.
Camp Wannaklot 2011
Camp Wannaklot was great as always. This year, 150 campers had a wonderful time at Camp Wannaklot. A total of 98 terrific volunteers served as counselors, worked in the med lodge, or helped get the campers to and from camp. Read more and view camp photos.
HoG Needs Assessment — Please Tell Us What You Think
HoG is conducting a needs assessment survey of families in Georgia affected by inherited bleeding disorders. One adult from each family should go to http://www.surveymonkey.com/s/HoG to complete the survey. Read more.
Danny C. Named Firefighter of the Year
HoG client and volunteer Danny C. was recently named Firefighter of the Year by the Ben Hill Volunteer Fire Department. Each year the 30 members of the Ben Hill Fire Department vote on one person as Firefighter of the Year and the award is presented at a banquet. Danny said he was very surprised when his name was called at the banquet in March of this year. He was told that he was selected because he gave the greatest effort over the past year. Read more.
I recently received a mailing from you called the “Client Medication Profile.” Why are you asking me to complete it and mail back to you? I get my child’s other non-hemophilia medications from my local retail pharmacy. Thanks, Concerned Mom
Dear Concerned Mom:
The pharmacy must keep a current record of drug allergies and a list of all medications prescribed for each client. Read more.
Board Member Spotlight: Meet Andrew Maurer
With all the changes coming about due to healthcare reform, I thought you might find it reassuring to know that there is a Board member who is not only knowledgeable in this industry, but has experience to boot! Meet Andrew (Andy) Maurer. Read more.
29th Annual Hit 'Em for Hemophilia Golf Tournament
Hemophilia of Georgia will host the 29th annual Hit 'Em for Hemophilia Golf Tournament on Tuesday, November 1, 2011 at the beautiful Château Élan Winery & Resort in Braselton, Georgia. The honorary co-chairs for this year’s tournament are Bill Acree of the Atlanta Braves and Steve Sitton from AT&T. Several Atlanta Braves celebrities are expected to attend the tournament. Read more.
Genome “Editing” Corrects Hemophilia B in Mice
Researchers at The Children’s Hospital of Philadelphia (CHOP) used genome editing, a gene therapy method, to treat hemophilia in mice. This is the first time genome editing has been successfully done on study animals with clinically relevant results. The study was led by Katherine A. High, MD, director of CHOP’s Center for Cellular and Molecular Therapeutics. She is also a Howard Hughes Medical Institute Investigator. High has been conducting hemophilia gene therapy clinical trials for more than a decade. Results of the study were published in the online version of Nature on June 26. Read more.
HoG Nurses Available for School In-Service Presentations
HoG nurses offer school in-services because it is important that teachers and school officials feel comfortable knowing what to do for a bleeding problem, instead of calling 911 for a minor problem or, at the other extreme, failing to let parents know about important concerns about their child’s health. Read more.
Spin for Kids
Join the Camp Wannaklot team at the annual Spin for Kids bike ride on October 22 and 23 and help raise money for Camp Twin Lakes. Read more.
Client Dinner Photos
View photos from recent HoG client dinners.
View the clinic schedules for the Georgia Hemophilia Treatment Centers.
Read HoG's Blog
Have you read HoG's Blog yet?
Hemophilia of Georgia is not engaged in the practice of medicine and does not endorse or support any particular factor concentrate or treatment protocol. HoG recommends that you consult with your physician prior to starting any course of therapy. Occasionally HoG disseminates information on new treatments or therapies. HoG shares this for informational purposes only and makes no claim as to its accuracy or effectiveness.