Blog

April 24, 2012

My Personal Experience with Beating Hepatitis C

The HTCs and HoG are staffed with excellent doctors and support personnel and I thank all of them for their dedicated work helping people like me. I met Cathy Dowis for the first time during an annual visit to the Emory HTC where the usual blood work and questions took place, all in all a routine visit. A few weeks later I received a devastating call from Cathy. She told me that my blood work showed elevated liver enzymes indicating Hepatitis C. My first response was "What? Hepa...Hep" I could barely get the words out.

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March 30, 2012

Camp Wannaklot and the Trot to Clot Walk And Run — A Winning Combination!

Being a spouse of someone with hemophilia has introduced me to a community filled with amazing people. As I learn about their stories and how HoG has enriched all our lives, I am humbled and more determined to be a part of something so special and important. My first major volunteer job was as a counselor at Camp Wannaklot and 2012 will be my fourth year in this role.

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March 15, 2012

Tobacco—I’m Not Buying It Video Contest for Students

What would you buy with an extra $1000? That’s the grand prize in the Tobacco—I’m Not Buying It video contest introduced March 8 by the U.S. Surgeon General's Office and the Centers for Disease Control and Prevention (CDC) Office on Smoking and Health.

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March 12, 2012

Dying with Dignity: Not the Easiest Dinner Conversation (But It Is Getting Easier)

I have learned that it takes practice to talk about dying with dignity, particularly when you have five minutes during one of Hemophilia of Georgia’s statewide family dinners. I mean, seriously. I’m supposed to talk about death and dying issues right after our clients and their families have enjoyed a nice buffet? For a fleeting moment that is what went through my mind when it was decided that family dinners are as a good a time as any to talk “advanced directives.” These directives tell your family and doctors how you want to be treated when you can’t speak for yourself.

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February 22, 2012

The Hemophilia Handbook: From Three-Ring Binder to Internet Resource

I inherited The Hemophilia Handbook. When I began working with Hemophilia of Georgia (HoG) in 1990, The Handbook was two years old and already very successful.

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