Skip to content
HoG Handbook DONATE
  • Instagram
  • Vimeo
  • Linkedin

8607 Roberts Drive, Suite 150 Sandy Springs, GA 30350-2237

(770) 518-8272phone    (770) 518-3310fax

8607 Roberts Drive, Suite 150 Sandy Springs, GA 30350-2237


What I Need to Know About My Bleeding Disorder


This is a list of things you need to know so you can "take charge of your health."

  • Name of bleeding disorder
    • If you have hemophilia is it A (factor VIII) or B (factor IX)?
    • If you have von Willebrand Disease, what type is it?
  • Level of severity
    • Is your bleeding disorder considered mild, moderate, or severe?
    • If you have hemophilia, what percentage (%) of factor do you have in your blood?
  • Do you have an inhibitor from taking factor concentrate?
    • If you use factor concentrate, what brand is it and what is the dosage? How often do you take it?
    • What other medication do you use to help control bleeding symptoms (name, dose, and when do you take it?)
  • Have you had the shot (vaccine) for Hepatitis A, or are you immune?
  • Do you have Hepatitis B, have you had the shot (vaccine), or are you immune?
  • Name of shots (vaccines) you have had or will need in the future
  • If you have Hepatitis C
  • If you have HIV
  • Condition of your joints
    • What are symptoms you watch for with bleeds?
  • Family's bleeding disorder history and who is a carrier
  • The right way to use my medicine
  • What to do if you have an allergic reaction?
  • Type of health insurance and coverage 
  • What exercises you do to strengthen body? 
    • Are there certain exercises or sports activities you need to avoid?
  • What to do if you have an injury? Who do you call?
  • What to do if you need a surgery?
  • What to do if you need dental cleaning or dental work?
  • Any special diet