March 27, 2014
Whether you are dating someone new or wondering which friends to tell, talking about your bleeding disorder might feel like an important moment of truth in your relationship with a significant other. After all, you are not only sharing personal information which could come as a big surprise to the person to whom you are speaking, but it also might be an opportunity to learn something important about the person you are with.
February 19, 2014
When was the last time you educated someone about bleeding disorders? Some of you may have educated a family member on what it means to have hemophilia. Some of you may have spoken to a school nurse about von Willebrand Disease. Or, maybe you've shared a post on Facebook with friends, explaining some of the myths surrounding bleeding disorders. As members of the bleeding disorder community, education and advocacy come along with everything else: it's something
that you do so often, you almost forget you are doing it!
February 6, 2014
SnowJam 2014: the Kindness of Strangers, the Generosity of Friends and the Power of a Very Large SUV
The HoG offices closed at noon on Tuesday as the snow storm began in earnest. I was attending a luncheon and left early, but it was too late. It took me 3 hours to drive to the exit nearest the office, normally a 15 minute trip. I knew there was no way I could make it all the way home.
January 15, 2014
June of 1989 was my first experience with volunteering. In May of that year I completed middle school and was anxiously looking forward to beginning high school in the fall. As with most soon-to-be 14 year old boys, I was filled with anxiety about starting a new school. To make matters worse I was facing an entire summer of sitting around my house worried about the upcoming change.
December 16, 2013
We all have family holiday traditions. Often traditions seem to happen spontaneously and evolve from year to year on their own. Sometimes, as family dynamics change, we find it difficult to keep those traditions intact and they come to an end. So how do you fill that void? How do you create a meaningful and enduring tradition?
November 13, 2013
“Sorry, your password must contain a capital letter, two numbers, a symbol, an inspiring message, a spell, a rainbow, a hieroglyph and a unicorn”. Have you been frustrated trying to create new passwords that satisfy requirements like these?
September 13, 2013
In rare situations a person living with hemophilia may meet the criteria for SSDI based on the severity of their condition which may prevent them from maintaining gainful employment. A lack of income combined with mounting medical expenses can lead to severe financial distress. Fortunately, in some cases, Social Security Disability benefits can help alleviate some of the financial strain caused by your medical condition.
February 25, 2013
Hi! When I learned in 2006 that I had von Willebrand Disease, I was very surprised but relieved to finally know why I was having complications that the doctors could not explain. Then one day as I was driving my son to school, he called my name as blood was pouring out of his nose. It scared me but I could not be afraid as my son was evidently frightened.
January 29, 2013
I am going share with you one reason that I volunteer with Trot to Clot. One of the most important things to me in life is sharing experiences with my family; both my immediate family and my extended family. I have a loving wife Mary Beth, and three young kids, Madilynn, Makenzie, and Joseph. The Trot to Clot Walk and Run is such an easy way to get my family involved with the community.
January 14, 2013
Over the past several years we have been asked by friends to donate to charities that would benefit their family members or that they were particularly interested in. We were more than happy to divert some our charitable donations to these charitable organizations.
When our grandson Ethan was diagnosed with hemophilia we re-directed most of our charitable donations to Hemophilia of Georgia but continuing to donate to those charities championed by our friends and other select charities.