September 13, 2013
In rare situations a person living with hemophilia may meet the criteria for SSDI based on the severity of their condition which may prevent them from maintaining gainful employment. A lack of income combined with mounting medical expenses can lead to severe financial distress. Fortunately, in some cases, Social Security Disability benefits can help alleviate some of the financial strain caused by your medical condition.
February 25, 2013
Hi! When I learned in 2006 that I had von Willebrand Disease, I was very surprised but relieved to finally know why I was having complications that the doctors could not explain. Then one day as I was driving my son to school, he called my name as blood was pouring out of his nose. It scared me but I could not be afraid as my son was evidently frightened.
January 29, 2013
I am going share with you one reason that I volunteer with Trot to Clot. One of the most important things to me in life is sharing experiences with my family; both my immediate family and my extended family. I have a loving wife Mary Beth, and three young kids, Madilynn, Makenzie, and Joseph. The Trot to Clot Walk and Run is such an easy way to get my family involved with the community.
January 14, 2013
Over the past several years we have been asked by friends to donate to charities that would benefit their family members or that they were particularly interested in. We were more than happy to divert some our charitable donations to these charitable organizations.
When our grandson Ethan was diagnosed with hemophilia we re-directed most of our charitable donations to Hemophilia of Georgia but continuing to donate to those charities championed by our friends and other select charities.
January 3, 2013
Back in 2011 there were two voluntary recalls of alcohol swabs and wipes. In January, there was a voluntary recall by the manufacturer for alcohol wipes and swabs that may have been contaminated by bacteria. In August, there was a recall of alcohol swabsticks, which are primarily used for PICC lines or ports.
August 23, 2012
So it is the start of the school year and there are a million and one things on my mind. School supplies, uniforms, book pickup, carpool, after school activities and more (not for one but three boys!). MORE!!! OMG, I have to have an in-service for all the new teachers in Avi's class this year, plus all the adjunct faculty he will be in contact with. Time is of the essence. Luckily, HoG Outreach Nurse Danny is on speed dial!!! Actually on text!
June 28, 2012
My experience at GTI has been an amazing experience and adventure. The extravagant activities that the GTI staff provided for me helped educate about becoming a better leader and taking the things they teach us and applying them to everyday life.
June 4, 2012
Reiki has proven to be a very effective pain and stress management tool for me over the past three years. The major incident that Reiki assisted me with was due to a car accident where I was rear-ended at a stop-sign, the other car was travelling at about 30 mph and rammed my vehicle into the car in front (also stationary). Fortunately, there were no broken bones, only soft tissue damage. However, due to having von Willebrand Disease, I (like many of you) couldn't take the anti-inflammatory medications to help with recovery and due to my own sensitivity to pain medication, was relying on Tylenol versus stronger analgesics.
April 24, 2012
The HTCs and HoG are staffed with excellent doctors and support personnel and I thank all of them for their dedicated work helping people like me. I met Cathy Dowis for the first time during an annual visit to the Emory HTC where the usual blood work and questions took place, all in all a routine visit. A few weeks later I received a devastating call from Cathy. She told me that my blood work showed elevated liver enzymes indicating Hepatitis C. My first response was "What? Hepa...Hep" I could barely get the words out.
March 30, 2012
Being a spouse of someone with hemophilia has introduced me to a community filled with amazing people. As I learn about their stories and how HoG has enriched all our lives, I am humbled and more determined to be a part of something so special and important. My first major volunteer job was as a counselor at Camp Wannaklot and 2012 will be my fourth year in this role.