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July 28, 2014

My Experience at GTI

My experience at Georgia Teen Institute (GTI) was like no other. I met so many caring and generous leaders. My favorite moments at GTI were with my family group and with my team. I was truly blessed to be paired with such amazing people that week.

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June 19, 2014

Expect the Unexpected: Behind the Scenes at HoG Events

The spring event season at HoG was one big fun-filled adventure. Our days were jam-packed with detailed checklists, planning meetings, storage runs and lots of packing in order to properly prepare for our upcoming events. Three fabulous Trot to Clot Walk/Runs, one lovely Volunteer and Donor Appreciation Reception, and an exciting new event at the Gwinnett Braves game all took place in two quick months.

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May 7, 2014

Celebrating 25 years: A Yankee and a Southern Belle Unite to Improve Care and Treatment

In April, we celebrated Ruth Brown’s 25th anniversary at Hemophilia of Georgia.  Ruth serves as Vice President of Programs at HoG.  When I first met Ruth, I was a newly transplanted Yankee and she appeared to be a Southern Belle.

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March 27, 2014

Talking About Your Bleeding Disorder

Whether you are dating someone new or wondering which friends to tell, talking about your bleeding disorder might feel like an important moment of truth in your relationship with a significant other. After all, you are not only sharing personal information which could come as a big surprise to the person to whom you are speaking, but it also might be an opportunity to learn something important about the person you are with.

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February 19, 2014

Easy Advocacy

When was the last time you educated someone about bleeding disorders? Some of you may have educated a family member on what it means to have hemophilia. Some of you may have spoken to a school nurse about von Willebrand Disease. Or, maybe you've shared a post on Facebook with friends, explaining some of the myths surrounding bleeding disorders. As members of the bleeding disorder community, education and advocacy come along with everything else: it's something
that you do so often, you almost forget you are doing it!

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February 6, 2014

SnowJam 2014: the Kindness of Strangers, the Generosity of Friends and the Power of a Very Large SUV

AmyB web 110pxThe HoG offices closed at noon on Tuesday as the snow storm began in earnest. I was attending a luncheon and left early, but it was too late. It took me 3 hours to drive to the exit nearest the office, normally a 15 minute trip. I knew there was no way I could make it all the way home.

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January 15, 2014

Volunteering: A Personal Story

June of 1989 was my first experience with volunteering.  In May of that year I completed middle school and was anxiously looking forward to beginning high school in the fall.  As with most soon-to-be 14 year old boys, I was filled with anxiety about starting a new school.  To make matters worse I was facing an entire summer of sitting around my house worried about the upcoming change.

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December 16, 2013

Celebrate the Season with New Traditions

We all have family holiday traditions. Often traditions seem to happen spontaneously and evolve from year to year on their own. Sometimes, as family dynamics change, we find it difficult to keep those traditions intact and they come to an end. So how do you fill that void? How do you create a meaningful and enduring tradition?

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November 13, 2013

Those Pesky Passwords

“Sorry, your password must contain a capital letter, two numbers, a symbol, an inspiring message, a spell, a rainbow, a hieroglyph and a unicorn”. Have you been frustrated trying to create new passwords that satisfy requirements like these?

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September 13, 2013

Applying for Social Security Disability with Hemophilia

In rare situations a person living with hemophilia may meet the criteria for SSDI based on the severity of their condition which may prevent them from maintaining gainful employment. A lack of income combined with mounting medical expenses can lead to severe financial distress. Fortunately, in some cases, Social Security Disability benefits can help alleviate some of the financial strain caused by your medical condition.

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