Skip to content

It takes more than medicine...

  • Instagram
  • Vimeo
  • Linkedin

8607 Roberts Drive, Suite 150 Sandy Springs, GA 30350-2237

(770) 518-8272phone    (770) 518-3310fax

8607 Roberts Drive, Suite 150 Sandy Springs, GA 30350-2237


Horizons in Hemophilia, December 2018


Happy Holidays and a Happy New Year Graphic - text on red background

Holiday Pharmacy Schedule

By Michelle Turkington, Director of Marketing and Communications | December 1, 2018

The Hemophilia of Georgia office and pharmacies will be closed on Monday, December 24, Tuesday, December 25, and Tuesday, January 1, in observance of holidays. Please plan ahead on your pharmacy orders. Hemophilia of Georgia wishes you and your family a wonderful holiday season! More...

Leer en español graphic screen capture of the website home page

Open Enrollment for ACA Marketplace Health Insurance Closes December 15

By Theresa Schaffer, Director of Social Work | December 1, 2018

Open enrollment for the 2019 Affordable Care Act (ACA) marketplace health insurance plans, also known as "Obamacare," runs from November 1 to December 15. More...

Leer en español



Hemlibra Approved for Hemophilia A Patients Without Inhibitors

By Leigh Carpenter, RPh, Director of Pharmacy | December 1, 2018

Genentech announced the US Federal Drug Administration, FDA, approval of Hemlibra for routine treatment in adults and children, ages newborn and older, with hemophilia A without inhibitors. More...

Leer en español


2018 National Conference: Being Visible: Women with Hemophilia logo and image of a butterfly

Journal Entries from the 2018 National Conference: Women with Hemophilia

By Julia, Client and Mother of a Client | December 1, 2018

Date: November 9, 2018 at 10:39:00 PM ESTToday we arrived in Grand Rapids, Michigan for the 2018 National Conference: Women with Hemophilia. I can't believe that this is happening or that I'm here, being a part of this wonderful occasion where a new door is opening for women with bleeding disorders. More...

Leer en español


Queen Victoria photo

The Royal Disease: A Family History Update on Queen Victoria

By Louis P. Le Guyader, Ph.D. | December 1, 2018

This article reports a new key fact about hemophilia. It is unlikely that the United Kingdom's Queen Victoria was a first-time carrier of hemophilia in her family. Most likely, she inherited it. This has implications for reporting the mutation rate causing hemophilia (30% seems too high). It suggests a call out to people with hemophilia – please give deeper, broader, and more complete family histories! More...

Leer en español


Emily and her family: self, husband, and three young sons

Emily’s Story

By Emily, Mother of a Client | December 1, 2018

Ethan was diagnosed with severe hemophilia when he was a year old. At that time, there was only one medication to treat his form of hemophilia (factor 9 deficient, hemophilia B). Ethan was able to infuse only once per week, however, as he grew, the expectations were that he would need to eventually infuse two (or more) times per week. More...

Leer en español


Mighty Sticker Club Mutt Mascott

Mighty Sticker Club

By Michelle Turkington, Director of Marketing and Communications | December 1, 2018

Welcome Edward, our newest member of the Mighty Sticker Club! To become a member, one must master the steps of self-infusion, including mixing factor, selecting a vein, sticking oneself, infusing factor, and completing a treatment calendar. More...

Leer en español


SweetWater Brewery Logo

Hops for Hemophilia

By Nick Stinson, Community Engagement Coordinator | December 1, 2018

On Saturday, October 6, people gathered at the SweetWater Brewery in Atlanta to raise money for research for a cure. It was a cool, crisp afternoon for our first Hops for Hemophilia. The purpose of the event was to raise a glass for a cure to raise awareness, have fun, and socialize. More...

Leer en español


Spin for Kids Image of Sheldon with Bike

Spin for Kids

By Elizabeth, Molly, and Ashley: Hemophilia of Georgia Junior Board of Directors | December 1, 2018

Camp Wannaklot had another successful year at Camp Twin Lakes 12th annual Spin for Kids fundraising bike ride. Spin for Kids helps fund life-changing camp experiences for children with serious illnesses, disabilities, or other life challenges. More...

Leer en español


Hit'em for Hemophilia Golf Tournament Kick-off featuring Mason

2018 Hit’ Em for Hemophilia Charity Golf Tournament

By Sarah Weikert, Director of Development | December 1, 2018

On October 23, more than 200 golfers from across the country teed up to raise money for research for a cure. More...

Leer en español


Community Dinners Across Georgia- family picture

Community Dinners Across Georgia

By Nichelle Sims, JD, Associate Director of Research and Advocacy | December 1, 2018

Hemophilia of Georgia (HoG) hosts family dinners across Georgia to give clients the opportunity to connect and learn from each other and HoG staff members. More...

Leer en español